As a parent or caregiver of and individual with intellectual/developmental disabilities it is important to have the most current information on treatment, care-giving, and other supports. Following is a partial list of national, state, and local disability specific resources.
General/Advocacy
- ABLE coloradoABLE, 1888-609-3468
- Parent to Parent of Colorado, www.p2p-co.org, 877-472-7201
- Colorado Developmental Disabilities Council, www.coddc.org,720-941-0176
- Family Voices – Colorado Resource Directory, www.coloradoresourcedirectory.net
- Colorado Statewide Independent Living Council, www.coloradosilc.org
- Colorado Cross Disabilities Council, www.ccdconline.org, 303-839-1775
- Family Caregiver Guide for Services
- Assistive Technology Partners, www.at-partners.org, 303-315-1280
- Parent Center Resource Hub, www.parentcenterhub.org/resources/ 303-365-2772
- National Organization for Rare Disorders (NORD), www.rarediseases.org, 800-999-6673 (voicemail)
- The Legal Center for People with Disabilities and Older People, http://www.disabilitylawco.org, 303-722-0300
- To file a complaint with the State – Colorado Department of Public Health and Environment visit www.colorado.gov/pacific/cdphe/health-facilities-complaints
- Division of Vocational Rehabilitation. Assists individuals whose disabilities result in barriers to employment. 303-866-4150
- Denver ABS http://www.denverabc.org/ Free assistance for filing taxes
- Teaching Your Child About Peers With Special Needs, care.com
- Retail Savings Guide for People with Disabilities, couponchief.com
- Bedding for people with I/DD Best Mattress Reviews
- Hippotherapy My Heroes, 678-984-7774
- The Initiative, For People w/ IDD Who Have Experienced Abuse Theiniativecolorado.org
- DRMAC Rides, 720-665-5656
ADD/ADHD
- Creating An Optimal Environment For A Kid with ADHD, homeadvisor.com
Autism/Asperger Syndrome
- Autism Society of Colorado, www.autismcolorado.org, 720-214-0794 or 866-733-0794
- Autism Society of America, www.autism-society.org, 800-328-8476
- National Autism Center, http://www.nationalautismcenter.org/resources/for-families/, 877-313-3833
- Operation Autism for Military Families, http://www.operationautismonline.org/, 866-366-9710
- Accommodation Resources, washington.edu
- Teaching Tips, https://www.iidc.indiana.edu/?pageId=601, 812-855-6508
- Estate Planning for Parents of Children With Autism, https://www.justgreatlawyers.com
- Firefly Autism, fireflyautism.org, 303-759-1192 (Denver) 970-335-9727 (Grand Junction)
- Colorado Fragile X, coloradofragile-x, 303-770-2914
- GRASP, grasp.org, info@grasp.org
- Ascendigo, 970-927-3143
- Autism Service Dogs For Children, Rover.com
- Water Safety Guide, intheswim.com
- Tuck, Treatment Options for ASD-related Sleep Problems
- Sleep Guide for Children W/ Autism Spectrum Disorder, Happy Sleepy Head
Brain Injury/TBI
- Brain Injury Association of Colorado, www.biacolorado.org, 800-955-2443
- Brain Injury Association of America, www.biausa.org, 800-444-6443
Cerebral Palsy
- Cerebral Palsy Guidance. www.cerebralpalsyguidance.com, or contact them at www.cerebralpalsyguidance.com/contact/
- Cerebral Palsy Association of Colorado Springs, www.cpappr.org, 719-638-0808
- United Cerebral Palsy, www.ucp.org, 800-872-5827
- Cerebral Palsy Guide, www.cerebralpalsyguide.com, 888-908-4261
- Cerebral Palsy Group, https://cerebralpalsygroup.com/, (774) 325-0083
- CerebralPalsy.org, cerebralpalsy.org , 800-692-4453
Chromosomal Disorders
- The XXYY Project, www.xxyysyndrome.org, 303-400-3456
- National Fragile X Foundation, www.nfxf.org, 800-688-8765
Down Syndrome
- Colorado Springs Down Syndrome Association, www.csdsa.org, 719-633-1133
- Mile High Down Syndrome Association, http://www.rmdsa.org/, 303-797-1699
- National Down Syndrome Congress, http://www.ndsccenter.org, 800-232-6372
Education
- Higher Education for Students With Disabilities, accreditedschoolsonline.org
- Scholarships For Students With Autism Guide, usnews.com
- National Down Syndrome Society Scholarship, National Down Syndrome Society
- Resource Guide For Students With Disabilities, Affordable Colleges
- Scholarship Guide For Students With Disabilities, Affordable Colleges
- College Resources For Students With Disabilities, College Choice
- List of Helpful Resources for Students With Disabilities, EduBirdie
- Resources for Students With Disabilities: Education USA
- Digital Resources for Students with Autism: Teach.com
Epilepsy
- Epilepsy Foundation of Colorado, www.epilepsycolorado.org, 303-377-9774, or 888-378-9779
- Epilepsy Foundation, www.epilepsy.com, 800-332-1000
Fetal Alcohol Syndrome
- NOFAS Colorado, www.nofascolorado.org, 303-692-2620
- National Organization on Fetal Alcohol Syndrome, www.nofas.org, 800-666.6327
Hearing and Vision Impairments
- Anchor Center for Blind Children, www.anchorcenter.org, 303-377-9732
- Colorado School for the Deaf and Blind, www.csdb.org, 719-578-2100
- National Federation of the Blind of Colorado, www.cocenter.org, 303-778-1130, or 800-401-4632
- Hearing Health Complete Guide for Deaf & Hearing Impaired College Students
Learning Disabilities/Dyslexia
- Learning Disability Association of Colorado, www.ldaamerica.org
- LD Online, http://www.ldonline.org
- National Center for Learning Disabilities, www.ncld.org, 888-575-7373
- Rocky Mountain Branch of International Dyslexia Association, www.dyslexia-rmbida.org, 303-721-9425
Mental Health
- Federation of Families for Children’s Mental Health-Colorado, www.coloradofederation.org, 888-569-7500
- National Alliance for the Mentally Ill, Colorado, www.namicolorado.org, 888-566-6264
- Depression and Bipolar Support Alliance, www.dbsalliance.org, 800-826-3632
- The Balanced Mind Parent Network, The Balanced Mind Parent Network
- Colorado Statewide Mental Health Crisis Hotline. Mental Health Professionals available 24 hours/day 1-844-493-8255
- Consultants For Children, Inc. consultantsforchildren.com, 720-272-1298
Respite
Social Security Disability Benefits
- The Simple Dollar, http://www.thesimpledollar.com/disability-benefits-guide/
- The Simple Dollar, Social Security Disability Benefit Calculator
Tourette Syndrome
- Tourette Syndrome Association, www.ts-stories.org, 718-224-2999
Community Activities
2020 Camps
- Respite Camps
- DP Online Summer Camp Guide
- Rocky Mountain Village Summer Camp
- HRCA Summer Classes/Events
- Revel Lounge
Community Trainings/Workshops